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WELCOME TO THE COMMUNITY FORUMS.
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Author Topic: Welcome
Brett
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Posts: 91
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Post Re: Welcome
on: May 2, 2012, 15:37
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Hi MisterB

Firstly welcome and it's a pleasure. I hope you have many a good conversations here.

My celiac/gluten ataxia/candida is also self diagnosed. When starting out on the diet you tend to see a major improvement within a couple of weeks. It then slows down a bit after a couple of months to such an extent where you think it is not working, but DON'T GIVE UP - IT IS STILL WORKING(just saying what happened in my case)

I am glad the mental fog has gone and that you are supplementing, but I try and get all my vitamins and minerals from food.

Don't get me wrong I supplemented in the beginning because not all the foods I eat now used to agree with me when I first started.

If you research a food that is gluten/yeast free, but it does not agree with you don't avoid that food for ever. Just put it on the back burner so to speak and re-introduce it a couple of months later on.(for me a classic example was Almonds)

I have not got any vertigo, but do have a bit of dizziness due to lying down or standing up for the first time.

I think my tinnitus has a lot to do with yeast and by taking the gluten and the yeast out of my diet it will hopefully clear one day.

I would like to leave you with a link that connects Celiac Disease, Gluten Ataxia and Candidiasis http://www.denvernaturopathic.com/news/celiac.html

Cheers for now

Andrea
Member
Posts: 2
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Post Re: Welcome
on: May 6, 2012, 09:12
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I have been very busy adjusting to my new job after the 21 month illness vacation I was on. I am doing well except that I recently broke out with the dreaded Celiac Rash on my legs. (I’ve had a mild case of it on the soles of my feet since diagnosis.) I don’t understand how this happened except that I did eat out the day before – risky business, I know.

I still have my days when I am exceedingly tired and my moments of utter confusion (foghead), but nothing like it used to be. I still walk like a drunk occasionally when tired. I am still losing all the weight I put on right after going GF. My pants and shoes, yes, I said shoes, are falling off of me! But, I’m afraid to buy anything until my weight stabilizes. So, well, I’m very comfortable as long as I hold my pants up. I still need to work on adding exercise back into my routine and I need to focus upon replacing the fruits I take each day to work with something else. (I am in my car all day and convenience is essential.)

But, I have made great strides since finding your site – no doubt about it. Within a few weeks, I was on a training trip to Texas and both amazed and awestruck that I was there. Just a few weeks before, I thought I would never work again. Taking the vinegars, coffee and cinnamon out of my diet fixed me right up, and got me going. God and luck did the rest.

I am looking for a cookbook or, some such guidebook on the yeast free diet now that I’ve mastered the GF sans the recent eating out foolishness. I know I need to further my efforts at getting rid of the yeast.

What do you recommend? The info I’ve gathered on the net seems so extreme when added to my already limited dining possibilities, but if it has to be, it has to be, I guess.

I sure am enjoying being a somewhat productive member of society again….

I read your latest blog. Interesting… I hope you are having a good day!

Brett
Administrator
Posts: 91
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Post Re: Welcome
on: May 7, 2012, 12:30
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Hi Andrea

Sorry to hear about your rash, but although not the same I had terrible athletes foot until such time as I increased my omega3 intake. I am not saying that the 2 conditions are related, but an increase in fats can do wonders for the. skin.

The symtoms of Gluten/yeast die off can often mimic being glutened. The word for die off is Herximer(hope I spelled it correctly).
Therefore it is very difficult to distinguish between being Glutened and the Herximer effect. This is why some people think that the diet isn't working and quit. That is not the case and if you are eating Gluten and Yeast free DON'T GiVE UP!!!

As for loosing weight, by eating Gluten and Yeast free you will settle at your ideal weight weather you have weight to loose or gain. Don't buy new pants just yet, rather just alter them according to your waist and if you put on then you can let the pants out.

Candida or the Yeast diet is quite limiting and mainly consist of meats, veggies, eggs, nuts and low sugar fruits. I had a problem with eggs and nuts early on and the only nut I can now tolerate are Almonds( after 2 years - you might be different), but if your gut can handle these then almonds make a good snack and are very nutritious. Here's a web site that might help
http://www.yeastinfectionadvisor.com

Cheers for now

Brett

P.S. Chia seeds are also very portable and easy to take in the car( mix with water).

GFCanary
Member
Posts: 1
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Post Re: Welcome
on: August 18, 2012, 15:53
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Hi !

Thanks for creating this forum. It's nice to have other gluten ataxians to talk to.

My name is marcia and I found this forum while googling to see if gluten ataxia was permanent. After some googling,
it appears that residual damage is possible.

As far as my story goes ...

I had ataxia, diagnosed via rhomberg, for 16 1/2 years but it went away in 2006 after 1 year on the gfcfsf + mostly
chemical free diet. Fwiw, I still had a huge candida problem, was eating Bragg's acv, and many of my nutritional level, inc b12 were low. And I was eating far more "gf" goodies than I should've. But I was also eating every brain food I could find. I've been Paleo for 4 years and Wahls since Jan.

It turns out that I have the DQ2 gene for celiac disease but I don't think I had celiac until June 2005. That's when my digestion came to a halt and my digestive symptoms forced me to eat only bland foods. No pepper even. That lasted
for 6 - 12 months and I was able to re-introduce a wide variety of foods. Even hot peppers .. : )

It's been 6 years since I started walking normally but I'm still having intermittent problems with brain fog, writing (fine motor skills) and speaking. If I'm tired I always have problems but otherwise I never know when I'm going to have a bad day. And
I also have constant orthostatic intolerance which is related to my petite mals and sob. I don't know which causes what.

I was wondering what others here had found that helped with other neuro problems we might have. Specifically I'm looking for supplements, etc that may help our brains recover. I've used several supplements like fish oil, CoQ10, etc but since they haven't produced substained reliable results I stopped when the bottle ran out. Do you think we need to take these
regardless ? I just can't justify the expense without seeing any long term results.

Thanks. Once again..It's nice to meet you. Marcia

Ps. I was going to start a new thread but didn't want to get signed up emails. Is this possible ?

PoppyHorse
Member
Posts: 1
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Post Re: Welcome
on: November 12, 2012, 20:18
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Hi

Great to finally find a forum of people in a similar boat to myself.

My name is Helen and I found this forum while looking for information on gluten ataxia. I haven't had an 'official' diagnosis but I've got, or had every symptom that all the articles mention.

My problems started in earnest in August this year when I suddenly, temporarily, lost the hearing in one ear and developed vertigo, tinnitus, nausea and excruciating pain in the ear. My MRI scan showed changes that were labelled as "non specific" and "most likely representing small vessel ischaemic change", in other words they didn't have a clue. At the end of my stay in hospital I was given the diagnosis of labyrinthitis and told that it had 'probably' developed because I had had an upper respiratory tract infection six weeks before.

In retrospect, before my hospital admission there were a lot of other problems that because I was so unwell and didn't really know it, I didn't put together. My balance was terrible, the clumsiness I had had my whole life was getting far worse, speaking was becoming a chore as I just couldn't get the words right, at times swallowing was a mission in itself, the brain fog was getting deeper, I had memory loss, I was always tired and whenever I sat down, I'd fall asleep. I don't know why, but I didn't mention these symptoms when I was in hospital.

This is the strange bit. I had intended to go off gluten again this year after doing the Dukan diet last year and discovering that without gluten I didn't get my annual dose of hayfever but hadn't quite got around to it. When I did finally go off gluten, all my symptoms either disappeared, or got substantially better. I then started reading and was quite shocked to find that gluten was most likely responsible for all the things I'd been putting up with for a lot of years and that if I kept eating it, things would get a lot worse.

I absolutely cannot tolerate gluten at all now, to the point that foods labelled gluten free but slightly contaminated by utensiles etc have me vomiting within an hour, dizzy and feeling awful.

Sorry this is so long winded but so many things have happened that I think I could just about write a book!

Cheers

Helen

Brett
Administrator
Posts: 91
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Post Re: Welcome
on: December 15, 2012, 11:41
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Hi Helen

Welcome, yes Gluten is responsible for a lot of the symptoms that you are experiencing if not all. I believe that we(humans)were never designed to eat gluten and if I can suggest that you cut out yeast as well.

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